- Symptoms?
- Posted by jpotvin77@hotmail.com
Hi there, My doctors think I have Lupus however it's not confirmed yet.
I did some research and found that Lupus and aids used to be often
confused with eachother. I haven't been tested for HIV and I'm
wondering if infact I do have any of the symptoms. Just in case.
I'm always tired!! I've always had Low WBC, ANA Antibodies, C3 and C4
are low. When I get sick I can never get better, I'll have a cold for
months! I have chronic hives from exercise. I'm always weak, very
fragile, small bones and thin. Very irregular menstrual cycles, if any.
Night sweats, maybe that means fever. I faint easily, usually because
of low blood pressure and exhaustion, as I'm always exhausted.
Should I be worried or is this completely off??
Thank u, Jacquie
- Posted by Brian Mailman
jpotvin77@hotmail.com wrote:
sometimes just verbalizing/expressing an issue will suggest the solution.
if you have concerns, and reasons to have concerns, then get tested. if
you're in one of the risk categories, then you should be getting tested
regularly anyway.
b/
- Posted by jpotvin77@hotmail.com
Hi, Thanks Brian, I'm not at risk really and I dont expect anyone to
diagnose me online (as per the email Larry sent me). However I'm just
curious as to the symptoms. I like to do my own research before
discussing anything with any doctor so I can make suggestions. Doctors
don't know everything and sometimes aren't open to listen. I was the
one that suggest it could be Lupus and the doctor agrees with me
however it's been 4 months and still not confirmed, they didn't even
think to test me for it until I brought up the research!
So I only wondered if it is at all possible according to my symptoms.
Thank u, Jacquie
- Posted by tsip29
wow! dont worrie about lupus, worrie about the rest!
whats the reason , that you are so often sick! any explanation by
docters.
whats your 'medical' background! do yu use meds,did you have sugery...etc.
- Posted by Larry Farrell
This is a much different situation than your original post suggested.
Lots of folks post in misc.health.aids who clearly want someone to
diagnose all sorts of ailments based on whatever descriptions they give,
and it is pretty clear that most of them aren't going to even talk about
the issues with their health care providers. (I guess the anonymity of
the the Net allows them to confess things they would not ever discuss
with their health care providers because they don't want the providers
to judge them because of their activities, etc.)
jpotvin77@hotmail.com wrote:
--
Larry D. Farrell, Ph.D.
Professor of Microbiology
Idaho State University
- Posted by jpotvin77@hotmail.com
Yes I just want to get down to the problem, I don't take any meds at
all, And I don't want to until I find out the problem behind everything
or else I could make it worse. No surgery, no problems previously, no
family health problems. Just me.
The doctors had no explaination of my being sick for so long - they
always said it was because my WBC was so low likely. So I started
taking Echanacia however I'm still always sick!
I've been fighting this fatigue for a few years and finally I suggested
to test for Lupus becaues I know the symptoms, however doing research I
found Lupus is mistaken for HIV sometimes so I just thought I'd explore
possibilities.
Thanks, Jacquie
- Posted by tsip29
oke, i see you do some research on your own! mostly i do that too!
have you ever looked at alternative treatments! most of those
'alternative' clinics have a whole body check up!
from there you can deside what to do!
- Posted by Brian Mailman
jpotvin77@hotmail.com wrote:
so you're at risk unreally/ hmmmm....
and I dont expect anyone to
that's a bit different than your first message, but yeah, in general
that's a good idea. doctors like educated patients.
well... a disgnosis is actually a shortened term for the more accurate
'differential diagnosis.' just saying 'night sweats, fever, low wbc,'
.... could be any one of a number of things, some more major than others.
any -good- doctor will listen, they have to in order to come up with
an accurate differential diagnosis--they have to rule out this that and
the other, consider possibilities, etc.
you do say a 'low cd4' so that to me would indicate testing for hiv
would be advisable. if nothing else, to rule it out.
b/
- Posted by jpotvin77@hotmail.com
Thanks Brian, I made an appointment I will discuss everything I found
on here with her. I found a good doctor but she's new to Canada,
doesn't have good english and always goes to her big medical book for
answers and suggestions so I found doing my own research will help her.
Small sacrafice, 10 other doctors I saw didn't have time to research.
Sometimes I wished we had privatized doctors here like the United
States.
I gotta get to the bottom of this.
Thanks, Jacquie